Paediatric Psychology Education and Resources
Patient Information
A Children's Guide to Paediatric Psychology
A Grown Up's Guide to Helping Siblings
A Sibling's Guide to When Your Brother or Sister is Poorly
Service specific resources
- Diabetes
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Websites:
Wellbeing:How to Manage a Mammoth - video animation
Clinical Psychologist Dr Rose Stewart uses a fun and imaginative story to help young children understand the emotional impact of diabetes and how it can be managed. This story can help children and their families to talk about sensitive issues and to work on accepting the challenges of living with diabetes, whilst feeling supported and safe.
A range of books developed by Clinical Psychologist Dr Rose Stewart covering a range of common psychological issues specific to living with diabetes and can be used in conjunction with advice and support from the diabetes teams.
A wide range of online resources and support aimed at improving the lives of people with Type 1 diabetes.
Young People:
A community for young people aged 11-25 living with type 1 diabetes who understand what it’s really like juggling the ups and downs of life with diabetes. An opportunity to meet new friends, learns new skills and build your confidence (funded by the Steve Morgan Foundation and run by Diabetes UK).
A free information pack for parents and school to support young people with type 1 diabetes in school, at home and when socialising.
Newly Diagnosed:
A free toolkit for newly diagnosed children to help them and their parents deal with their diagnosis of Type 1 diabetes, including information leaflets and Rufus the bear with Type 1 diabetes, with patches on his test and injection sites.
- Oncology and Haematology
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Websites:
- The Oncology Guide
- Children's Cancer and Leukaemia Group (CCLG)
- Solving Kids Cancer
- Young Lives vs Cancer
- Rainbow Trust
- Lennox Children's Cancer Fund
- The Joshua Tree
- Grace Kelly Childhood Cancer Trust
Well-Being:
The Little Princess Trust provides real hair wigs, free of charge, to children and young people up to the age of 24 who have lost their hair due to cancer treatment and other conditions. The charity also funds research seeking to find kinder and more effective treatments for all childhood cancers.
“The UK Beads of Courage programme empowers children whilst supporting their mental health, by allowing them to own, record and tell the story of their childhood cancer”.
Wishes:
Sophie’s Appeal, is a volunteer-led charity, supporting families in the local area, that have a child impacted with a life-limiting illness or recently bereaved. They offer free respite holidays at Rockley Park Poole, Sophie’s Surprises and Family Photo shoots for families that have tragically received a terminal cancer diagnosis. They also help fund research into Wilm’s Disease.
The Oliver Curd Trust provides holiday accommodation to families affected by childhood cancer and other life threatening and life-limiting conditions, including those experiencing bereavement of a child. The charity seeks to provide memories, happiness and periods of escape for children and their families during difficult times.
Teenagers:
Teenage Teenage Cancer Trust is a UK charity for young people aged 13-24. They offer unique care, information and support designed for and with young people to support them through treatment, and help them regain independence and meet other young people in similar situations.
If you’re aged 13-24 and whether you’re currently having treatment, in remission, or beyond, you can benefit from free, unlimited support, whenever you need it. They offer in-person and digital activities, and residential stays, for you to enjoy with other teenagers and young adults in a similar situation.
Research:
Cancer Research UK is the biggest charitable funder of research into children’s and young people’s cancers in the UK. They provide information about the most common types of cancer in children including signs and symptoms, treatment and clinical trials. They also signpost to support available for children and their families.
- Cystic Fibrosis
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Websites:
Wellbeing:
CF trust - Resources and Information
Living with CF isn’t one size first all. Cystic Fibrosis Trust have put together a list of useful information and resources for children and young people living with CF and their friends and family.
A support group for parents, friends and relatives of children with cystic fibrosis.
Getting Nosey about CF – animation video
A short animation to help children with cystic fibrosis understand their condition and to explain to other children what cystic fibrosis is.
CF: what’s it all about – animation video
A short film that aims to help children understand a bit more about cystic fibrosis.
Young People:
If you’re between 6 and 25 and have cystic fibrosis, or you are close to someone who is, there are lots of events, support and opportunities to get involved with.
An online programme of events, workshops and activities for 6-14 year olds living with cystic fibrosis or are close to someone who is. From games nights, to free online workshops, to movie nights there is something for everyone.
- Muscular Dystrophy
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Websites:
The Neuromuscular Service aims to provide a full diagnostic and clinical management service for both children and adults living with a neuromuscular condition. It was recently awarded Centre of Excellence status by the national body Muscular Dystrophy UK.
The team comprises of a specialist neuromuscular consultant, and is attended by consultants in neurology, rehabilitation, genetics and orthopaedics. Neuromuscular care advisors, neuromuscular physiotherapists and a psychologist are in attendance at the clinics.
The inherited neuromuscular conditions seen include:
- Muscular dystrophy
- Congenital myopathies
- Spinal Muscular Atrophy (SMA)
- Charcot Marie Tooth disease (CMT)
- Myotonic Dystrophy
- Congenital Myasthenia gravis
- Neuropathies and mitochondrial myopathies
These specialist clinics are run weekly both for adults and children and some clinics will run jointly with other clinical specialties, such as cardiology, genetics, dietetics and orthopaedics. This means that patients can be seen by a number of clinicians and have a number of assessments at one appointment if required.
Living with a muscle wasting and weakening condition can be exhausting, stressful and lonely. With endless medical appointments, physiotherapy, treatments and respiratory support. That’s why, for over 60 years, we’ve been building our community. Bringing you together with friends and family, scientists and supporters, staff and volunteers, healthcare professionals and partners.
Since 1985, we have worked with the SMA Community to ensure that everyone affected by SMA has access to the best care, support and treatments and that research continues to bring much needed breakthroughs.
Find out more about the work we do and how best we can support you.
While we hope that research and clinical trials will one day lead to a treatment, or cure, for Duchenne, we believe it is vital to support families living with the condition today. We support families from diagnosis through their whole Duchenne journey.
Working to support those living with Charcot-Marie-Tooth Disease
Aims and Objectives
- To offer assistance and support to people who have Charcot-Marie-Tooth Disease*
- To initiate, co-ordinate, promote and support research into CMT and its effects.
- To stimulate medical education on the subject of CMT.
- To offer assistance and support to those who care for people who have CMT.
- To spread awareness of the condition to health professionals and the general public.
*CMT is also known as Hereditary Motor and Sensory Neuropathy or Peroneal Muscular Atrophy
- Constipation
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Websites:
Helplines:ERIC have a team of highly trained advisors who can provide specialist information and advice on any childhood continence issue. You can call them for advice, support or just to talk to someone who knows about bowel and bladder problems.
You can contact the Bladder and Bowel helpline to receive advice on bladder and bowel health, continence promotion and options for managing incontinence, products, as well as signposting to services.
Children and Young People:
Advice for teenagers and young people
ERIC have a page of advice and information created for young people with real life experience of living with and managing chronic bladder and bowel conditions. From managing at school or away from home, to managing feelings and relationships.
Information, advice and resources about bladder and bowel issues in children.
- Epilepsy
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Websites:
Wellbeing:Epilepsy Action is a charity that improves the lives of everyone affected by epilepsy. They offer talk and support groups, epilepsy forums, information and advice, befriending services and a helpline.
Mental health and wellbeing space
Top tips and coping strategies to support your mental health and wellbeing whilst living with epilepsy.
My brother or sister has epilepsy
Information for siblings all about epilepsy, including some of the most common questions that siblings might have.
Children and Young People:
Information, videos, and resources for children all about epilepsy.
An online community created to support children and young people living with epilepsy in the UK.
An online space for young people living with epilepsy. Get the information and life hacks that can help you. No jargon, no judgement, just real information about the things you need to know.
- Children's Community Nursing
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Website:
The Children's Community Nursing service provides nursing care to children aged 0 to 18 years who have an identified nursing need. They offer community visits to children, young people and their families across Shropshire, Telford and Wrekin.
The service co-ordinates and manages packages of care for children and young people with complex health/nursing needs to maximise their opportunities and reach their full potential by providing:
- Direct nursing care and treatment
- Monitoring and review of care and treatment plans
- Symptom management for life-limiting/life threatening conditions through to end-of-life care and support
- Training, advice and support to the family and/or carers to enable them to continue providing on-going care
- A resource for other professionals working with your child for information and advice on specialist/complex nursing care
The service operates Monday to Friday, 9am to 5pm and provides care to four specific groups:
- Complex health needs
- Long-term conditions
- Palliative care
- Short term and acute care
- Preparation for Procedures
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Websites:
Information and resources for kids, parents and carers to help them manage and reduce pain associated with procedures, surgeries or illness.
Online learning and resources around helping children to swallow pills.
Resources aimed at making hospital visits better for children. These include animation and comic strips and leaflets for children, young people and parents/carers.
A free app to help children reduce their anxiety when visiting the hospital.
Specific procedure video resources:
Coming to hospital - What might happen when children come to hospital for procedures.
A little deep sleep - What happens when children go to hospital for an operation.
Getting an MRI - What to expect during an MRI scan.
Information about psychology
Career paths
If you are interested in a career in psychology you can find out more about the different roles and what they look like in the links below. Whether you are a student, just starting out in your career or looking for a change, there are lots of places to get information and advice that might be helpful.
What is clinical psychology?
Clinical Psychologists work with people experiencing a wide range of mental and physical health difficulties, including anxiety, low mood, addiction, learning difficulties and relationship issues. They can work with people of all ages, including families or couples and their work aims to reduce psychological distress and promote wellbeing.
They may carry out a clinical assessment to understand more about an individual's situation. There are lots of different ways they might do this, including asking questions, using psychometric tests, interviews and direct observation of behaviour.
Following a thorough assessment, a Clinical Psychologist develops a shared psychological "formulation" - this is a bit like putting together a jigsaw with all the pieces of information gathered, to explain what's happening and possible reasons why. This shared understanding helps to guide the best way forward and what intervention might be most helpful.
Further information about Clinical Psychologists can be found on the British Psychological Society (BPS) website link below